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Information Online – An Infographic for National Carers Week 2016

Australia’s unpaid carers provide over $1 billion worth of care every week- that’s 3.8% of the country’s GDP. National Carers Week is dedicated to recognising and celebrating the outstanding contribution that unpaid carers make to our nation.

Anyone at any time can become a carer. National Carers Week is an opportunity to educate and raise awareness among all Australians about the diversity of carers and their caring roles. The week gives everyday Australians a chance to learn about carers and caring in Australia.

To this end, CareSearch has created an infographic to help carers finding trustworthy health information online (569kb pdf). The infographic presents tips on which websites or other online resources you can trust. It also explains how carers can trust the information and resources found on the CareSearch website. Please feel free to share it with your social media networks to help spread the word about carers in Australia.

The CareSearch website provides trustworthy, evidence based information that helps carers manage a loved one’s terminal illness at home. You can find it at www.caresearch.com.au

 

Positions Vacant

Karuna Hospice Services is a charitable, not-for-profit organisation which provides services that transform and enrich lives.

We do this by utilizing the wisdom and compassion of the Buddhist Tradition as a way of living and dying.

Karuna's services are linked to the times in life when people are most likely to be seeking answers and care, for themselves or

 others. These include situations where lives are limited by illness, when facing death or dying, when grieving and when seeking meaning in life. Our culture of service, integrity, openness, collaboration and supportive communication is lived, not just talked about,

therefore excellent interpersonal skills are just as critical to success as your skills and experience.

Karuna currently has three exciting career opportunities available:

 

Palliative Care Registered/Clinical Nurse (0.8 FTE permanent part-time):  Read More 

 

Palliative Care Registered/Clinical Nurse (0.8 FTE) six month temporary contract (maternity relief):  Read More

 

 

Bereavement Counsellor (0.2FTE) six month contract:  Read More 

 

 

New Optimal Cancer Care Pathways

Australia still has unacceptable variation in cancer rates and outcomes which differ by Indigenous status, geographical location and socioeconomic status.

The Australian Government Chief Medical Officer has announced 15 tumour specific Optimal Cancer Care Pathways (OCPs) for the diagnosis and treatment of cancer. 

OCPs are national guides to promote the best cancer care for specific tumour types. Each pathway maps the key steps in a cancer patient’s journey from diagnosis to survivorship or end-of-life and describes the key principles and expected standards of care at each stage. The National Cancer Expert Reference Group (NCERG) was established under the auspices of the COAG Health Council and includes representation from the Commonwealth, states and territories, the non-government sector, clinical oncologists and consumers.

Outcomes for Australian cancer patients have improved dramatically over the past 30 years, with current survival rates now about 67 per cent overall. This reflects strong public awareness of preventing cancer, participating in cancer screening, and acting on early diagnosis. It also underlines the importance of having good access to high quality clinical treatment.

However despite the progress, Australia still has unacceptable variation in cancer rates and outcomes which differ by Indigenous status, geographical location and socioeconomic status. The NCERG’s major focus has been on reducing this variation. In recognition of the importance of the OCPs, the Australian Health Ministers’ Advisory Council (AHMAC) has endorsed 15 OCPs for implementation by all states and territories. Eleven OCPs have been endorsed by the COAG Health Council with the remaining 4 to be considered during 2016. The OCPs have also been endorsed by the Cancer Australia and Cancer Council Australia. The states and territories have agreed to pilot one or more OCPs in their health services during 2016-17 based on priorities identified within their cancer services and systems. OCPs have been developed for the 15 tumour streams: lung, colorectal, hepatocellular carcinoma, prostate, lymphoma, melanoma, pancreatic, ovarian, malignant glioma, head and neck, breast, oesophagogastric, basal cell and squamous cell carcinoma, endometrial, and acute myeloid leukaemia.

Each pathway was developed by an expert group including clinicians specialising in treatment of the particular tumour, GPs and consumers, and in consultation with medical colleges and peak health organisations.

There are three versions for each Optimal Cancer Care Pathway which can be accessed through the following links:

The NCERG Secretariat can provide further information. Contact Phillipa Lowrey, NCERG Secretariat on (02) 6289 8094 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

 

 

PALLIATIVE CARE QUEENSLAND (PCQ) CONFERENCE 2016


REGISTER NOW!



Program launched... check it out and  Register NOW ... this is an event not to be missed -


Thursday 3 to Saturday 5 November 2016
Rydges South Bank in Brisbane

 

The Palliative Care Queensland (PCQ) Conference is the premier conference on advanced clinical issues in palliative care. It will bring together specialist palliative care doctors, nurses and allied health practitioners from around Australia.

 The 2016 Conference theme   is  Embracing Life and Taking Control.  

 It will examine the role of palliative care in chronic illness with a view to demonstrating that palliative care improves quality of life and can be given alongside other specialist interventions. The programme will include when to refer, symptom control, psychosocial issues including pre and post bereavement care, advanced preparation for the end of life and some of the ethical and legal issues which may arise at this stage in the illness. 

 Speakers both national and local will cover areas as diverse as MND, renal failure, cardiac and respiratory failure.

Find out more here

 

The new 2016 | 2017 Entertainment Books are available now!

 Order your new 2016|2017 Entertainment ™  Membership today - and support PCQ

Choose from the traditional Entertainment™ Book or the NEW Entertainment™ Digital Membership, which puts the value of the Book into your iPhone or Android smartphone!

Each membership has hundreds of 50% off and 2-for-1 offers for restaurants, cafés, attractions, hotels, shopping, groceries and travel and contain over 2,000 offers that you can use whenever you like until 1st June 2017.

 PLUS Palliative Care Queensland  retains 20% of the price of every Membership sold which goes towards our fundraising!

 Order now 

National Palliative Care Week

Theme:  Living Well with Chronic Illness

National Palliative Care Week was 22 May - 28 May. This year’s theme was Living Well with Chronic Illness. We are focusing on how palliative care can help people with advanced chronic illnesses to have a high quality of life. We’d appreciate your support by including details in your newsletters and on social media to help reach people living with chronic illnesses.

 

Our call to action in 2016 is to get people to talk about their end-of-life care wishes before it is too late. PCA have launched their new website www.dyingtotalk.org.au where we have developed a Discussion Starter that can be used by anyone to help talk to their loved ones and health professionals about their end-of-life care wishes.

 

We ask Australians to work through our Discussion Starter to begin to think, talk and document what is important to them, including the care they want at the end of their lives. I have attached a copy of the Discussion Starter to this email and can provide printed copies on request.

 

 Key Messages for National Palliative Care Week

  • Talking about dying won’t kill you.
  • It is important to talk about dying with those closest to you, before the event.
  • Anyone with a chronic illness needs to talk about their end of life wishes with their loved ones and doctors.
  • The Discussion Starter makes having those conversations easier.

Tools for NPCW are available for download:

Dying to talk discussion starter

NPCW Communications toolkit

The following posters are available for download:

Managing my pain means I can spend quality time with my family.

Palliative care gives my son a chance to enjoy life.

Palliative care gives me a quality of life I thought was lost.

I enjoyed a pain free holiday with my beautiful wife.

 Advanced Paediatric Palliative Care Education

@ the Lady Cilento Children’s Hospital, Brisbane

The Qld Paediatric Palliative Care Team at Lady Cilento Children’s Hospital are organising an 2 day professional development advanced workshop.  There are Interstate speakers, simulations, workshop throughout the course of the event.

Friday 27 & Saturday 28 May, 2016

New two day workshop – highly recommended to attend both days

Suitable for all disciplines and all levels of staff directly involved with paediatric palliative care patients, across the spectrum including neonates & adolescents. This will be a new & more advanced interactive workshop with prerequisite learning. This is a different workshop from 2015.   For more information click here

 

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PCOC REPORT - 

Summary - Patient Outcomes in Palliative Care, July - December 2015 - Queensland

Patient Outcomes in Palliative Care, July - December 2015 - Queensland

 

Palliative care not one size fits all

Palliative care for Aboriginal and Torres Strait Islander people needs to be delivered with cultural

awareness and respect, says Palliative Care Australia (PCA) CEO Liz Callaghan.  Read more here

Palliative care now has two supporters in Federal Cabinet

Health Minister Sussan Ley adding palliative care to her portfolio will bring two strong advocates
of palliative care into the Cabinet, says Palliative Care Australia (PCA) CEO Liz Callaghan.
Ms Callaghan says Minister Ley will be joined at the Cabinet table by Rural Health Minister Fiona
Nash who has put a significant amount of time and energy into palliative care while she has been
responsible for the sector. Read more here

MND Australia report shows need for improved access to palliative care

Two Australians die of motor neurone disease (MND) every day, showing the need for better
access to palliative care for people with these conditions, Palliative Care Australia (PCA) CEO Liz
Callaghan said.
The report - Economic analysis of MND in Australia by Deloitte Access Economics - released by
MND Australia today highlights not just the huge costs to the health system, but a gap in access
often felt by chronic disease groups. Read more here

 PCQ Endorses Charter

Palliative Care Queensland recently endorsed ‘A charter for care of adult patients at the end of life’. The charter aims to provide a platform for adult patients, their families, carers and healthcare workers to more openly discuss their wishes at the end of their life.
View the Charter.

National Palliative Care Week 2015

Sunday 24 - Saturday 30 May 2015. 2015 theme: Dying to talk; talking about dying won't kill you.

What went on in QLD?

Thursday 28th May 2015

The National Consensus Statement: Essential elements for safe and high quality end-of-life care was launched at St Vincent’s Private Hospital Brisbane. The launch was attended by Ms Liz Callaghan CEO of Palliative Care Australia and Dr Julia Wootton, President of PCQ.

End-of-life care is an important issue for the community. The health care that people receive in the last years, months and days of their life can help to minimise the distress and grief associated with dying for the individual, their family, friends and carers. Therefore the Australian Commission on Safety and Quality in Health Care (the Commission) has developed a new national consensus statement that sets out the principles and elements that shape the delivery of safe and high-quality end-of-life care in acute health care settings.

Speakers at the launch included Professor Villis Marshall AC, Chair, the Commission, Liz Callaghan CEO of Palliative Care Australia; The Honourable Sue Boyce, former Senator for Queensland; Dr Mark Boughey, Director Palliative Care, St Vincent's Hospital Melbourne; Ms Jodi Rose, author and wife of the late Mr Murray Rose, Olympian.

 Friday 29th May 2015

Thanksgiving Service

His Excellency the Honourable Paul de Jersey AC Governor of Queensland with The Very Rev’d Dr Peter Catt, Dean of the Cathedral and Dr Julia Wootton President of Palliative Care Queensland.

Thanksgiving Service

As part of National Palliative Care Week, a Thanksgiving Service was held at St John's Cathedral, Brisbane to remember loved ones and those that have had experiences with palliative care services.

This was the 4th PCQ Thanksgiving Service and was attended by His Excellency, the Honourable Paul de Jersey, Governor of Queensland and Patron of PCQ. Ms Leanne Linard MP represented the Premier and her Government. The service was open to everyone including patients, families and health care professionals and was followed by morning tea. PCQ would like to thank all those volunteers who helped things go so smoothly on the day.

 

Raise the Roof Ball a Huge Success 

Hummingbird House Inaugural Ball "Raise the Roof"

Hummingbird House painted the city purple and green in celebration of National Palliative Care Week. Brisbane City Hall and the Brisbane Convention and Exhibition Centre was lit up in a beautiful display of Hummingbird House colours, indicating great community support for the building of Queensland’s only children’s hospice.

To end the week with extravagance, Hummingbird House had their inaugural ball. Titled “Raise the Roof”, the ball was a huge success with an overall total of $210,000 raised. Thanks to the generosity of guests, Hummingbird House literally ‘raised the roof’!

The 524 ball guests got into the spirit of ‘industrial glam’, arriving in ball gowns and work boots, tuxedos and hard hats. They were given a glass of purple champagne as they walked into the venue, which was alight with beautiful images of Hummingbird House children hung from scaffolding – a set design that took over 10 hours to install.

Hummingbird House will be fully operational for National Palliative Care Week 2016.

 Celebrate Life, Talk About Death Trivia Night

Palliative Care Australia hosted free Celebrate Life, Talk About Death trivia nights around Australia for National Palliative Care Week.

The Queensland Trivia Night was held at Coorparoo RSL & Community Club.